When we first held this tournament in the summer of 2021, we didn't know what to expect.  It ended up being a very emotional, fun, and successful event for our family and the GM1 community.  To say we were blown away at raising $41,000.00 in last year's tournamnet would be an understatment!  We continue to be in awe of the amazing community of friends, family, neighbors, and even complete strangers that we are a part of.  The money we have raised has contributed to multiple research projects and clincial trials that aim to help improve the lives of all children with GM1.

The Cure Kinley & Kennedy Golf Tournament has become our marquee fundraising event each year, and we hope you'll be able to join us as we continue to fight for a cure for this devestating disease!  This year, we've moved the event to the beautiful Greg Mastriona Golf Courses at Hyland Hills in Westminster to take advantage of their larger space and beautiful course.  Rather than a morning and afternoon option, Hylan Hills enables us to have a sinlge, large morning shotgun start for up to 216 players and new this year, if you are not a golfer you can choose to join us for lunch and the raffle.  Get your teams ready!

It's been another year filled with ups and downs for our family.  We've been able to take the girls on several adventures, including returning to Disney's Hawaiian resort, Aulani, where the girls enjoyed the pools, water park and beautiful beach. Plus, they had a fun, personal meet and greet with thier newest favorite Disney Princess, Moana.  We've prioritized these family adventures as we don't know how long we'll be able to do them - at least not in the same way we can today. We have already noticed trips getting to be very hard on the girls. They love them, but the fun also seem to trigger some forms of regression. 

Kinley and Kennedy are both 2 years post gene therapy now, which means only 1 trip to the NIH per year now instead of the 1 trip per quarter we've been doing for the last 2 years.  Unfotunately, both girls have continued to regress. They are medical stable at this time, however, cognitively Kinley has regressed to functioning closer to a 3 year old level. Both girls are at very high risk for seizures.  We notice it on the outside when the girls will stare off in a dream-like state, but they generally snap out of it when you call their name.  Though it's likely a matter of time before they start experiencing more active, violent seizures.

Kinley is getting much harder to understand verbally - even for mom and dad - and has been falling a lot more lately.  We've got an adaptive stroller for her to try to maintain her stamina when we're out and about, but don't need a wheel chair at this point. We moved both girls to a new school this last year to enroll Kinley in the SSN (Significant Special Needs) program.  She loves her new environment and is thriving in that regard. Kennedy loves 1st grade, but she has hit the point where she simply can't keep up in the classroom and, worse, she know's it.  She's expressed to us that she can't do things her friends can, and it's becasue she has GM1.  Still, she has a great teacher and one-on-one para and is always excited for school.

The other exciting news for our family in 2022 was the arrival of Kollins!  Many of you noticed Kylie's bump during last year's tournament, and we're happy to say Kollins joined us 9.1.2022.  We were lucky to be able to leverage technology to ensure she will not have GM1.  The girls are smitten.

As always, thank you for your support, donations, volunteering, sharing of our story, and love.  It means the world to us.

The Harrisons

Kyle, Kylie, Kinley, Kennedy, Kieran, and Kollins


Ways to Participate:


Register here at this site for a single, double, or foursome!



Reach out to kyliemcculloch@gmail.com if you'd like to volunteer.  We appreciate help in setting up, checking in, hole games, and pick up.


Donate (money or items)

We are looking for items to include in our raffle.  If you have a small business or would just like to contribute, please reach out.  Dollar donations can also be made using the link at the top of this page.



Our sponsors are what allow us to create such a successful event and fun day for everyone!  We have opportunities ranging from hole sponsorships to title sponsorships.  Check out the store link to review and purchase a sponsorship.



Even if you aren't playing or volunteering, we'd love to have you for the lunch and raffle.  You can register in the registration link above for a meal.


Volunteer Central

GoFundMe: www.curekinleyandkennedy.org 

Facebook Page: https://www.facebook.com/CureKinleyandKennedy 

Cure GM1 Foundation: www.curegm1.org 


Get your Cure Kinley & Kennedy merchandise for the tournament today!  Orders due by June 30th, 2023 and will be produced and shipped at that point, arriving in time for the tournament.



The Cure Kinley & Kennedy Golf Tournament is a classic Shotgun-start Scramble.  Each team will play 18 holes with the winning teams being determined by the lowest-below-par score.  ALL SKILL LEVELS ARE WELCOME TO PLAY!

Registration Inlcusions

Each player registration includes green fees, electric cart rental, driving range token, lunch, 1 mulligan, and entry into the on-hole compeitions (longest drive and closest to the pin).  Additional mulligans will be available for purchase at check in and on the course for $5/mulligan.

Professional Long-Drive Hole

We are excited to again have our professional long driver join the tournament this year!   Our long driver can hit 400+ yards and teams that pariticpate via donation will be able to use the Pro's drive on the hole.  Any player who holes out on the second shot will win a golf trip of a lifetime!


The three teams with the best below-par score for their round will win cash prizes!  Winners of the hole game (long-drive, closest to the pin, etc.) will also earn prizes.

Raffle/Silent Auction

Participants will have the opprotunity to bid on silent auction items throughout the day and during lunch.  Past items have included mountain getaways, DisneyWorld Tickets, and Golf Outings.  During lunch, a raffle will be held featuring many awesome prizes.  Raffle tickets will be available the day of the tournament.



NOT A GOLFER? Join us for lunch and Raffle by registering above.


Interested in Volunteering?

Email kyliemcculloch@gmail.com

06:30 AM Check In Starts The Greg Mastriona Courses @ Hyland Hills
07:30 AM Putting Contest Putting Green
08:00 AM Shotgun Start The Greg Mastriona Courses @ Hyland Hills
12:30 PM Lunch (+Raffle & Auction) Cottonwood Lodge @ Hyland Hills



07:30 AM

Start Time




Per Hole


Per Group

The Greg Mastriona Golf Course

9650 N Sheridan Blvd
Westminster, Colorado, United States

Phone: +1 (303) 428-6526
Web: http://www.golfhylandhills.com/