OUR SPONSORS

Cystinosis Research Network

Charity Golf Tournament 
Saturday August 14, 2021 | Myrtle Beach National Golf Course

 

$240 per 4 player team or $60 per player / 9 AM Shotgun Start

Captains Choice Format 

8 Team Winners 

Green Fees to: The Dunes Club, Barefoot, Caledonia, True Blue, Legends & More

Over 60 Raffle Prizes

BBQ Lunch provided day of play

     

The Cystinosis Research Network is an all-volunteer, non-profit organization dedicated to supporting and advocating research, providing family assistance and educating the public and medical communities about cystinosis.

Homes for Heroes®

The Cystinosis Research Network is an all-volunteer, non-profit organization dedicated to supporting and advocating research, providing family assistance and educating the public and medical communities about cystinosis. We are a private, nonprofit 501(c)(3) corporation, Federal Tax ID 04-3323789.

CRN began with a vision in 1996. The vision of one family, which gradually grew to include hundreds more. As our network of families grew, we began to see the need to do more. Concerned for the future of those living with this disease, we realized that if we didn’t step up to the plate and set that agenda, no one else was going to. With the guidance and advice of our medical and scientific community the Cystinosis Research Network was launched. In the past two decades CRN has grown from a “kitchen table” rare disease group of parents to an internationally recognized rare disease advocacy organization which has funded millions of dollars in research, provided family support including sponsorship of 8 biennial family conferences around the U.S., and educated the public and professional communities about cystinosis via access to standards of care, brochures and sponsorship and exhibition in professional conferences around the world.

Learn more about Cystinosis Research Network at https://cystinosis.org/

Net Proceeds to Benefit Cystinosis Research Network.

Contact:  Elwin Miles
843-222-5974
Elwin.Miles@gmail.com

Myrtle Beach National - West:

Rated 4.5 stars in Golf Digest’s “Places to Play” Guide in 2010, West Course at Myrtle Beach National is carved through secluded Carolina pines that provide golfers with the backdrop of nature. Its traditional layout and design offers wide fairways and large Mini Verde Bermuda grass greens that make for an enjoyable golf experience for players of all abilities.

Conveniently located off of Hwy. 501 in the heart of Myrtle Beach, West Course shares a common trait with its big brother, King’s North, in that it accentuates the natural setting with no housing in sight. The course includes open fairways and greens that, while open in front, are sloped heavily from back to front. All the par-4s play under 400 yards from the middle-back tees, and par-5s are all possible to reach in two, all playing under 500 yards.

The West Course finishes uniquely with a lengthy par-3 that features water running down the entire left-hand side.


Learn more at: https://www.myrtlebeachnational.com/

 

 

SCHEDULE
TIME TITLE LOCATION
08:00 AM Registration Begins Myrtle Beach National Clubhouse
09:00 AM Shotgun Start
TOURNAMENT INFO

08/14/2021

Tournament
Date

09:00 AM

Event
Start Time

18

Tournament
Holes

2

Groups
Per Hole

4

Golfers
Per Group

Myrtle Beach National Golf Club

4900 National Drive
Myrtle Beach, South Carolina, United States
29579

Phone: +1 (877) 283-2122
Web: http://myrtlebeachnational.com/