Luke Dreckman
7122292569
luke.dreckman@state.sd.us
WELCOME!!!
Thank you for considering to join us on our quest to "Care for Carter". This event will be a fun filled day with golf, food and drink, silent auction, games, and more!
This fundraiser will benefit Carter and CTNNB1 research - getting one step closer to a cure. CTNNB1 Syndrome is a rare, sever neurodevelopmental disorder with just over 400 cases confirmed WORLD-WIDE. Due to the lack of production of beta-catenin (a crucial protien) from the CTNNB1 Gene, develpment is delayed. Many individuals experience developmental delays, intellectual delays, inability to walk or talk, and have high risk for FEVR - which can cause blindness. There are currently 2 studies going on where a cure could be near. They are talking human trials within the next 12 months. So your support means everything to us.
If you are unable to make it, and would like to donate, see below for Venmo. Any contribution, big or small, can make a huge impact. Together as a team we can give Carter a better life!
Much appreciated, Luke, Paetyn, Cohen, and Carter
You can also register or donate by calling/texting Luke at 712-229-2569. We will accept a mailed check or Venmo (@LukeDreckman). Registration via venmo will eliminate transaction fees. There is a block of rooms booked at the Best Western Ramkota under Caring for Carter. Rooms include 4 passes to the water park for $139 (+taxes/fees). Their number is 605-336-0650.
TIME | TITLE | LOCATION |
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2604 West Russell Street
Sioux Falls, South Dakota, United States
57104
Phone:
+1 (605) 367-7092
Web:
https://dakotagolf.com/course/elmwood/